HSE organ donation opt-out register
- Thread starter DannyBoyD
- Start date
Wouldn't it be bonkers to develop the website in advance of the legislation passing?
Would you want to have an organ from such an intellectual in your body? I think that society is better off and the gene pool richer if such people are buried or cremated with all of their organs intact!
Don't think that intellectualism carries over in the liver, lungs, pancreas, heart or kidneys?
presidenttttt
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Seamless, that is an interesting model.
I have mixed feelings about this national policy. I do not like the idea that major decisions can be default opt in. We live in a time we are bombarded by information, a few distractions or an ill timed holiday and, how many people would be oblivious to these type of changes.
At least next of kin is still involved, but that could change without much information too.
And then there is trust in the state issues - children's hospital is a mess, systems under pressure with well published clinical errors and failures - are we sure decisions will be made with our best interest? People will say they can foresee the 2035 RTE investigates, or more likely The Ditch breaking news, about some politican or politicians son getting his land rezoned and a new kidney in some ambiguous chain of events
I have mixed feelings about this national policy. I do not like the idea that major decisions can be default opt in. We live in a time we are bombarded by information, a few distractions or an ill timed holiday and, how many people would be oblivious to these type of changes.
At least next of kin is still involved, but that could change without much information too.
And then there is trust in the state issues - children's hospital is a mess, systems under pressure with well published clinical errors and failures - are we sure decisions will be made with our best interest? People will say they can foresee the 2035 RTE investigates, or more likely The Ditch breaking news, about some politican or politicians son getting his land rezoned and a new kidney in some ambiguous chain of events
Yes, of course.
Same as people who contribute to their own health issues (e.g. lifestyle, smoking, drinking, drugs, dangerous driving, extreme sports, dangerous occupations, etc.) should be entitled to treatment as needed.
Other way round. You need the system to work in order to implement the legislation. Therefore, don't bring the legislation into force until you have a functioning system to give effect to it.
@TomEdison - that was rather my point!
Sarah Ryan
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I used to donate regularly, have been on Ozempic and Mounjaro since 2022 and can no longer donate as these medications are contraindicated for pregnant women so therefore can't accept donations anymore.Maybe an opportune time to suggest that anybody willing and able to donate blood and/or platelets might consider doing so. There's always a demand for it.
There is a lot of people on this medication, and there will be more in the future when the cost comes down, I really hope the IBTS find a way around this, I have flagged it with them twice it bothers me that much. I hate not being able to donate it's badly needed all the time.
No, I mean they're two very separate efforts involving completely different sets of people!
You suggested it bonkers that the legislation passed yet the app wasn't fully working. That makes zero sense unless you think that the HSE were going to go spend hundreds of thousands developing the website for a piece of proposed legislation that may or may not pass??? Or did you think the politicians were coding away as the legislation was being debated? That's bonkers!
Obviously the order to develop the website would only come after the legislation has passed. There is no logical correlation between our politician's abilities to pass a bill and the HSE's ability to deliver a service. Thinking that passing a bill should somehow make the HSE suddenly effective makes no sense.
Politicians of all hues of recent decades have shown an inability to get the HSE functioning as we might all wish. This is far from the first case of legislation being passed after which the service charged with providing the related service hasn't fully delivered as the legislators might have hoped.
It's government legislation. It was always highly likely to pass. And the process for getting cabinet approval for the drafting and introduction of the legislation would have included identifying the staffing, systems, budgetary etc requirements for operating the legislation. There would either have been a decision (a) to do the necessary preparatory work while the legislation was working it's way through the Oireachtas or (b) not to do the preparatory work until after the Oireachtas had passed the Bill, but then to do it before brining the Bill into operation.
Either way, the systems should have been in place by the time the legislation actually came into operation. In general, legislation doesn't come into operation until the relevant Minister signs an order bringing it into operation, and the principal reason for designing the system this way is to prevent legislation taking effect when the practical preparations needed for it have not been made.
Either way, the systems should have been in place by the time the legislation actually came into operation. In general, legislation doesn't come into operation until the relevant Minister signs an order bringing it into operation, and the principal reason for designing the system this way is to prevent legislation taking effect when the practical preparations needed for it have not been made.
Yes, but I was calling out the stated expectation that it should be in place when the legislation passed. That, or the expectation that an ability of legislators to pass said law somehow sets an expectation that the HSE can deliver anything is nonsense.
The legislation passed in Feb '24, the HSE had plenty of time to meet the date set out.
hear hear. And remember if you lived in the UK in the 90s, you may now be eligible to donate. The blanked ban due to CJD has been lifted
T McGibney
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Exactly my point, no logical reason why the website should be in place prior to the legislation being passed, but no excuses for the HSE's failure to deliver a functioning site in the almost 18 months that passed.
Yes, but you referenced the passing of the legislation, not the enactment. that's what I was pointing out!
The Bill had passed all stages in both houses of the Oireachtas by 14 February 2024 and was signed into law by the President on 28 February 2024. However, by its own terms (section 1(2)) its provisions were only to come into operation on a date to be specified in an order made by the Minister for Health. No time limit or deadlin was set for making the order, so the Minister could defer the operation of the Bill for as long as she liked.
Commencement provisions like this are pretty standard and, as already pointed out, one of the points is to ensure that there will be time to make the required preparations before the changes to the law come into effect.
So, there would be no excuse for not having a functional website up and runnign on day 1. Even if the IT project ran into problems, was delayed, etc, there was no commitment to a start date; the Minister could defer making the commencement order for as long as was necessary to complete the project.
Having said that, all we have at present is two people reporting that the website wouldn't accept their PPS numbers. That's annoying, but it doesn't necessarily indicate a systemic failure, and we don't see reports in the papers that the system is generally failing. (Do we?) So this could be a teething issue affecting a small number that only emerges when the system goes live, which as we all know from experience isn't that uncommon. From a user's point of view, this is an issue that ought to have been identified and fixed in development/testing. But I know nothing about the realities of developing and rolling out IT services; I just use them. Somebody who understands the business might well say to me that it is unreasonable or unrealistic to expect that all systems will function with 100% reliability from day 1, even though that is what I do expect.
Commencement provisions like this are pretty standard and, as already pointed out, one of the points is to ensure that there will be time to make the required preparations before the changes to the law come into effect.
So, there would be no excuse for not having a functional website up and runnign on day 1. Even if the IT project ran into problems, was delayed, etc, there was no commitment to a start date; the Minister could defer making the commencement order for as long as was necessary to complete the project.
Having said that, all we have at present is two people reporting that the website wouldn't accept their PPS numbers. That's annoying, but it doesn't necessarily indicate a systemic failure, and we don't see reports in the papers that the system is generally failing. (Do we?) So this could be a teething issue affecting a small number that only emerges when the system goes live, which as we all know from experience isn't that uncommon. From a user's point of view, this is an issue that ought to have been identified and fixed in development/testing. But I know nothing about the realities of developing and rolling out IT services; I just use them. Somebody who understands the business might well say to me that it is unreasonable or unrealistic to expect that all systems will function with 100% reliability from day 1, even though that is what I do expect.