Disability - advancing rights

Brendan Burgess

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To support people with disabilities and carers, I am:

  • increasing the Carer's Allowance income disregard to €1000 for a single person and €2000 for a couple; and
  • I am increasing the rate of Domiciliary Care Allowance by €20 per month, to €380 per month
 
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Disability​

The Programme for Government commits to advancing the rights and improving the lives of people with disabilities.

To progress these priorities, I am allocating over €3.8 billion to the Department of Children, Disability and Equality for disability services in 2026.

This includes funding for Community Based Specialist Disability Services to ensure people with disabilities receive the right support, at the right time, in the right place.

It will provide permanent and predictable funding, and deliver tangible impacts for people with disabilities.

  • over 9,000 people will receive the residential care they need, including 250 new placements next year;
  • 1,400 young people finishing school will be supported with day service places, along with 50 additional places for older adults;
  • families waiting for assessments will see progress, with around 6,500 private assessments funded to reduce delays;
  • more than 150,000 hours of home support and personal assistance will help people live independently in their own homes; and
  • 10,000 overnight and 15,000 day respite sessions will be provided
To drive reform, a dedicated unit has been established in the department to lead a full review of Ireland’s disability service model. This unit will work hand-in-hand with disabled people, their families, and representative organisations to shape a long-term vision for services to 2030.
 
this is likely not to be a popular opinion, im always a bit surprised by the lack of press about the doing away of carers allowance means test . It represents a very large increase in social welfare spending every year .
i was reading the following article about this lady who said the budget hadn't done anything to help her . Her husband feels unable to retire because she doesn't get carers. in that case though wouldn't her husband's income reduce enough to get carers . she works 3 days a week .Their child would receive disability allowance in their own right.

the income limits are raised to approx 104,000 a year for a couple which is fairly significant to still receive a state payment.

I can only assume they have very significant capital sums , which is fine but in that case it is not the lack of carers allowance that is stopping the husband from retiring?

I think a lot of carers would appreciate more support in respite and services to allow them and their dependents to live their best lives

https://www.independent.ie/irish-ne...ur-who-cares-for-daughter-22/a2102931382.html
 
can only assume they have very significant capital sums , which is fine but in that case it is not the lack of carers allowance that is stopping the husband from retiring?
Thie state also has an obligation to the disabled person themselves - parents and loved ones who step in to care for their needs are effectively absolving that ( significantly expensive ) burden from the state.

It’s difficult to describe just how torturous day to day life can be for the disabled and their families ,what with having to navigate not just the disability, but eternal waiting lists, non-existing services or respite, not to mention the complete and utter lack of interest or compassion from the various patronising HSE quangos who are supposed to ‘help’. To say nothing of the affected family’s ongoing financial drip feed of what income they do manage to earn to try and make up for the state’s effective abandonment.
So to my mind, any means test is yet another insult on top of injury.
 
but effectively are we trying just to absolve national guilt for a lack of systemic change such as providing supports , respite etc by paying carers allowance instead.
there is a very broad population of carers and needs . No carers should have 24 7 care with no support but that is exactly what can happen .
Carers allowance was supposed to be a subsistence payment when someone was unable to work because of the significant caring needs of dependents not a payment for the actual care provided
You are right that in the absence of those supports then carers should look for anything they can get but my argument is that that is not the original intention of the scheme and is the least impactful change that could be made.
 
and sorry in any brief periods caring I have repeatedly known I would not be able to do it for a significant period of time . at the same time what really helped was when services stepped in and provided support such as palliative care team etc
 
allowance was supposed to be a subsistence payment when someone was unable to work because of the significant caring needs
effectively are we trying just to absolve national guilt for a lack of systemic change such as providing supports , respite etc by paying carers allowance instead.
Suspect current system is working exactly as planned tbh, with little to no support provided, ensuring loved ones have no option but to step in.
 
Thie state also has an obligation to the disabled person themselves - parents and loved ones who step in to care for their needs are effectively absolving that ( significantly expensive ) burden from the state.

When did the State become more responsible for caring for my disabled family members than my family?
I think that the State should support families caring for disabled or elderly relatives but I find it very sad that we live in a society where the primary responsibility for caring for those who need it no longer resides with the family.
For the record I've been up close and personal with this issue so the "if you had someone who needed support you wouldn't thin k that way" response doesn't carry water.
 
where the primary responsibility for caring for those who need it no longer resides with the family.
If you read my post above you’ll see that I said nothing of the sort - I was responding to a poster who referred to a particular case of a family that had enough money so basically they shouldn’t be claiming carer’s.
My point was that the state also has obligations to the vulnerable person themselves, which are typically not fulfilled, so it’s a bad enough that families are left to fend for themselves without people suggesting they shouldn’t deserve any financial assistance either.
I’m also very ‘up,close and personal’ with this, so please don’t put words in my mouth either.
 
If you read my post above you’ll see that I said nothing of the sort - I was responding to a poster who referred to a particular case of a family that had enough money so basically they shouldn’t be claiming carer’s.
I was just asking a general question about how societal attitudes have changes to the extent that the State now has to be everyone's Mammy.
My point was that the state also has obligations to the vulnerable person themselves, which are typically not fulfilled, so it’s a bad enough that families are left to fend for themselves without people suggesting they shouldn’t deserve any financial assistance either.
I said nothing of the sort so please don't put words into my mouth.
Families are not left to fend for themselves. There are financial supports and services that people couldn't even dream of 30 years ago. The State will never be able to fulfill the role that used to be fulfilled solely by family members nor, in my opinion, should it. It should support and help people and where there is no family capable of supporting a person who needs it ( as opposed to people unwilling to support them) the State should step in. In the case of severe disability the State should offer whatever financial and other supports are required to assist the family. It;s still the primary responsibility of the family to support their disabled relative.

In the case of elderly people home help and the carers allowance etc should work like the fair deal scheme where the cost is deducted from the estate of the elderly person when they die. I wonder how many middle-aged middle-class children would choose to help when the cost was coming out of "their" inheritance, instead of asking the State to pay for the support they should be giving to their own parents.

My son is currently living with his elderly grandparents. He's 23, in college and working part time. He helps to clean and cook, does the shopping, picks up incontinence pads and adult diapers, cleans excrement off toilet floors, changes soiled bedsheets etc. He is entitled to carers allowance for that. I don't think he should be. He agrees and doesn't claim it. He's their family and that's what families are meant to do.
 
Delighted for your child that he’s able to do that. Some young people are not so lucky, nor the exhausted parents/carers they depend on, who are terrified as to what will happen to them when they are no longer around to care/provide for them - especially when the state and it seems, largely ableist fellow citizens, begrudge them the barest level of support.
 
Yes mustang ‘horses for courses’ pun intended for those who can then yes do work as carer without care allowance that’s your choice. I will interject a little empathy here, walking in someone else’s moccasins, because all we will have in the end is love. We are responsible for our loved ones care but for pity sake have an ounce of empathy for carers, too many shills and ministers for hardship preferring to spend on military jets than on vulnerable citizens. I have family in this exact situation terrified for their 24 your old with severe disability and additional needs a son whose mother has to care for him now in her 60s, who has severe ill health herself, husband 70 with ill health. They have paid into the system all their working lives they are workers, their work for the state will never stop. Why shouldn’t they claim if they can for some assistance. It’s means tested. Really unless you have cared for a child with intellectual special or physical needs you don’t know what it feels like. Who will care for their adult child when they are gone. yes they have responsibility but so does the state if it is to pretend to be a state which cares for the health of its citizens, it’s part of the constitution. I cared for my mother at home a victim of a severe stroke she was bed bound, where was the state then. I did this as it was my responsibility out of love and obligation, she was doubly incontinent suffered cdifficile using hoist to lift, peg feed, dealt with mrsa, seizures, medication, a careless HSE, as my mother required 24 hour care. Those that could afford to paid and 20 years ago it cost at least 250,000 for carers 24 hour not even properly qualified. It takes a village. Not looking for hand out or sympathy just human rights. Care of an elderly relative is not the same as lifelong care of a child with special needs and I would not equate them, comparisons are odious as my mother used to say.
 
Delighted for your child that he’s able to do that.
Thank you.
Some young people are not so lucky, nor the exhausted parents/carers they depend on, who are terrified as to what will happen to them when they are no longer around to care/provide for them - especially when the state and it seems, largely ableist fellow citizens, begrudge them the barest level of support.
"Exhausted", "Terrified"; very emotive language. Caring for disabled family members is hard work but it's not necessarily terrifying and carers are not necessarily exhausted.

I'm not aware of anyone, working for the State or otherwise, who "begrudge them [disabled people] the barest level of support". Again; very emotive and, along with the false dichotomy that "shills and ministers for hardship preferring to spend on military jets" as if the options were jets or care for the disabled.
We as a State spend a vast amount on healthcare and welfare supports. We have one of the best funded healthcare systems in the world as well as one of the most generous welfare systems. If those who need care are not getting it at a level which could reasonably be expected given those inputs then the problem is most likely waste and inefficiency within the system. If we want to fix that then the last thing we need is emotive language and dogma. We need cold hard analysis, a culture which concentrates on outcomes for patients and those with disabilities and a ruthless application of that culture to the structures and work practices within the service providers and State infrastructure.

None of that negates the responsibility of families or the moral imperative that those who have the resources to pay for their own care should do so.
hey have paid into the system all their working lives they are workers
The vast majority of people get more out of the system than they pay in.
 
"Exhausted", "Terrified"; very emotive language. Caring for disabled family members is hard work but it's not necessarily terrifying and carers are not necessarily exhausted.

Not just language - facts. And, easy for you to say. If they're not exhausted from the caring demands, they're certaiinly exhausted from trying to fight for basic services and advocate for their child who has the same rights as you and I btw. The state is brilliant at singing their own praises with soundbites like no waiting lists and protecting the vulnerable, which any parent of a disabled person knows is pure pie in the sky, compounding the struggle.

None of that negates the responsibility of families

Not one person above said anything about abandoning their responsibliites. Honestly the lack of empathy here is shocking.
 
Not just language - facts. And, easy for you to say. If they're not exhausted from the caring demands, they're certaiinly exhausted from trying to fight for basic services and advocate for their child who has the same rights as you and I btw.
Ys, dealing with the inefficiency and waste of the Public Sector is very difficult.
The state is brilliant at singing their own praises
And those employed by the State. The same people who reside over and are complicit in the waste and the suffering it causes keep patting themselves on the back and telling everyone who will listen how dedicated and hard working they are. I'm afraid the evidence just doesn't back that up.
with soundbites like no waiting lists and protecting the vulnerable, which any parent of a disabled person knows is pure pie in the sky, compounding the struggle.
I agree.

Not one person above said anything about abandoning their responsibliites.
I don't think anyone suggested otherwise.
Honestly the lack of empathy here is shocking.
I'm shocked by the lack of accuracy and understanding of what is being said.
 
Sadly nothing new, and pretty much the same patronising holier-than-thou response parents get from the CDNT and other so-called ‘support’ agencies.
My colleague and his wife used to get one week a year respite care for their son from Laura Lynn but once the HSE took over the medical staff there said that they couldn't offer it any more because of his medical needs.
The fact that unqualified parents looked after him at home the rest of the time was lost of them.
 
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