Thanks, I have already been to two consultants neither of whom is expert or has dealt very much with my problem or anyone with it. My GP sent me to these and at 150 and 180 euro- neither were cheap. There are consultants, as these were, who deal with something very like my problem but neither had any real experience of my specific problem. My problem sort of slots into another general area of medicine but not many would have dealt with it. I guess I'll just have to keep searching and trying different consultants. The idea of looking up help groups is good and I'll give that a try. Thanks for all other replies also.